CareSet Labs,  DocGraph Datasets, and Open Healthcare Data Advocacy

CareSet Labs creates open healthcare datasets. We believe the release of reliable and current data is vital to the improvement of the healthcare system. Our mission is to encourage an ecosystem of innovators to collaborate and share tools and research methodologies around open healthcare datasets. Purchase of the datasets available at CareSet Labs supports the community of data scientists focused on leveraging initiatives of transparency in healthcare.

CareSet Labs was born out of the DocGraph community. In 2010 DocGraph was formed as a movement to create open health data transparency. The efforts of the DocGraph community, guided by Fred Trotter, led to the first national Provider Referral data release by the US government. The original “DocGraph Data” has helped researchers, journalists, and companies around the nation to provide data-backed healthcare solutions.

In 2017 CareSet Labs, at the request of the original DocGraph founders, took over stewardship of the DocGraph community. We continue to work with federal, state, private, non-profit, and public entities to create and open healthcare datasets. We believe the release of reliable and current data is vital to the improvement of the healthcare system.

The DocGraph community at CareSet Labs continues to grow and includes academics, journalists, doctors, entrepreneurs, statisticians and more. Our members have used DocGraph datasets to restructure provider networks, teach classes, start companies, and report on quality metrics. We welcome anyone with passion for healthcare improvement to join us.

In 2018 the community expanded to include VRDC seat holders. The VRDC group is for seat holders who have access to the CMS virtual research data center provided by Medicare and Medicaid. This is a support and collaboration users group for data scientists who have access to approved data files and conduct their analysis within the CMS secure environment.

To become a member of the DocGraph community, please join us online!

https://groups.google.com/forum/#!forum/docgraph

Purchase of the datasets available at CareSet Labs supports the community of data scientists focused on improving transparency in healthcare.

DocGraph Hop Teaming is latest version of the classic dataset that shows how health care providers in the United States work together.

Please take a look at the extensive documentation for the reasons for the improved HOP dataset.

Data Documentation: DocGraph Hop Teaming Dataset Documentation

License: Open Source Eventually / Commercial License

The Medicare Referring Provider Utilization for Procedures (MrPUP) dataset details the healthcare procedures that Medicare providers referred in the outpatient setting in 2014, and is particularly useful in understanding how specific doctors use blood tests, CT scans, and MRIs to diagnose patients.

Data Documentation: CareSet MrPup Dataset Documentation

License: Open Source Eventually / Commercial License

The PaPR data set is an important new open data set that describes the adoption of e-prescribing as measured in Part D Medicare data. The dataset, called PaPR (Providers and Prescribing Records) details how different individual prescribers deliver prescriptions to pharmacies, either using e-prescribing, faxes or paper.  The PaPR (pronounced “paper”) data set aggregates this information on a per-prescriber basis.

Data Documentation: Data Documentation

License: Non-Commercial , Commercial

Root NPI Graph was an improved version of the FOIA “shared Medicare patients in time” provider teaming dataset. This was the second version of the “DocGraph” dataset and is often called the Doctor Referral dataset as referred to by Medicare. It includes both implicit and explicit referral relationships between doctors, hospitals and other types of entities.

Note that this dataset has been deprecated in favor of the new DocGraph HOP teaming dataset. For all new projects, please use that dataset. We maintain these datasets here mainly for comparison and archival purposes.

Data Documentation: CareSet Root NPI Graph Dataset Documentation

License: Non-Commercial , Commercial

Details how cancer patients enter and exit hospitals. This data is aggregated Medicare data starting in 2010 and ending in 2015, totaling six years.

Data Documentation: CareSet Cancer Moonshot Dataset Documentation

License: Creative Common 3.0

The physician referral data linked below was provided as a response to a Freedom of Information Act (FOIA) request that CareSet made more than 5 years ago.

These datasets can be difficult to find on the CMS website and sometimes the CMS resource is down, for this reason, we mirror this dataset here.

These files represent the number of encounters a single beneficiary has had across physicians at intervals of 30, 60, 90 and 180 days. For more details about the file contents for years 2009 – 2015, please see the Technical Requirements document.

Note that this dataset has been deprecated in favor of the new DocGraph HOP teaming dataset. For all new projects, please use that dataset. We also maintain these datasets because they go back farther than HOP, which could be useful for long-term analysis projects.

Data Source: Physician Shared Patient Patterns

License: Open Database License (ODbL)

DocGraph teaming data shows how healthcare providers who bill Medicare cooperate to deliver care to their patients. Essentially, the teaming dataset documents Medicare providers who share patients in a given year. The result of this is a data structure that data scientist call a weighted directed graph of relationships. To be more specific, the method used to generate the graph converts the bi-partite (two types of nodes, patients and providers) graph structure into a graph with just one type, a graph showing relationships between providers. In layman’s terms, the DocGraph teaming data set is massive map of the healthcare system in the United States. It shows referrals, ordering patterns and many other types of healthcare provider collaborations. This data set exists as the result of a FOIA request made by DocGraph. Since that time, DocGraph has continued to collaborate with CMS to ensure that the data was updated and reliable.

Data Documentation: DocGraph Teaming Datasets

License: Creative Common 3.0